Hello everyone! I hope you had a great weekend. We spent hours at the wic office today because they yet again messed up on Lenas pediasure. They lost her prescription and tried to hide it at first by giving us the wrong kind. That didnt work so they told me I would have to wait and see if her ped would send a new one but if they didnt, we would have to wait to pick up. I admit I got pretty irate with the lady and demanded to speak to the supervisor about it. We had already been waiting over 2 hours and I wasnt about to make the kids wait anymore. So the supervisor gave us a case to last until it gets fixed but I will still be filing a complaint. It wouldnt be so bad but we called a few hours before the appointment to make sure everything was good and was told it was. Lena has a cardiology appointment today. I am excited but so nervous. She will be getting another echo and im praying this doctor can offer new information for me on what we can do. I know how bad Lenas seizures are but I know her heart/lung is worse which is terrifying because her seizures are so bad. I always pray and hope for a miracle and never stop cherishing every moment with her. I would give anything to make her better. Im so scared they wont be able to do anything. Just once I would like someone to be able to fix something big. But I am incredibly thankful it isnt worse. Her health is terrible, dont get me wrong, but it could always be worse. She is doing well thankfully. She is now able to go from laying on her back to sitting completely up all by using her stomach muscles and is holding her bottle on her own almost always, as long as she isnt sleepy. She is also standing and balancing on her own for well over a minute but she panics if I try to get her to walk. It is very huge accomplishments for sure! I am so proud of her, I just cant express that enough. She blows me away on a daily basis. All she deals with in life and how she always stays so positive. God did an excellent job on my baby girl. Please pray her appointment goes well and we get some good news. We could really use some good news. I found out some bad news about my health and could also use some prayers. Im trying to figure out how to make time to get my stuff in order but it is hard. I will update after her appointment. I need to get some sleep, not feeling well right now. Have a great day and God bless. Thank you all so much for your love and support. I know we arent an easy family to put up with so I greatly appreciate that you do put up with us. Love, The Price Family
Posted on: Tue, 02 Dec 2014 07:28:47 +0000
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