Hello everyone, Well Titus had a pretty good visit for the most part. He is doing very well in a lot of areas. Such as his mobility. He still has a long way to go with speech and also more importantly eating. We did get the go ahead for him to begin with his feeding specialist , his swallow study came back great. Now its just a wonder for the vomiting since its not his throat. Could be medical. His Cyclosporine Level was EXCELLENT today!! Praise The Lord!!! Unfortunately he continues to have diarrhea and had one day of no vomiting when we did the med change for his anti- nausea. But last night and twice today so far he has vomited. We had to wait to leave to give a stool sample. As they want to check for something in him, for either the growth for GVHD in his gut, or a bacteria. His numbers from his labs are still bordering for GVHD. As well as a virus. So close watch on that. His WBC and ANC were still very low but unalarming at this point. So we have also gotten the go ahead to start him back on his Breast milk. Hoping it will be a little easier on his belly than the Peptide. So all and all it was a decent visit. Thank you all so very much for your loving words and prayers and encouragement! We are very grateful for you all.
Posted on: Mon, 18 Aug 2014 19:48:45 +0000
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