Hello my name is Teresa Taft and I was diagnosed in May of 2010, and was scared when I was told what they were doing, Ive had four surgeries so far on my head and an Basilar Aneurysm coiled, first surgery was in September but I cant swear by the month in 2010, they only took the bone out of my neck and that was all, within six months my symptoms are back and worse than before, so almost a year to the day I am having my second decompression surgery and this time they are taking a part of the skull out and putting in a dura-patch, could of use a tire inter tube as far as I knew what was going on. I spent like five days in the hospital cause my blood pressure was do high, when I got released I felt really good, doing yard work , painting walls, cleaning , but not over doing it. When the two weeks came to get my stitches out, something felt weird like my brain dropped or moved , something wasnt right , but they said its a normal feeling in some patients. Not even an hour after getting my stitches out we were out eating and I became sick, I had to throw up and my head was pounding, it was either that night or the next we called an ambulance cause I couldnt move without an extreme headache throbbing ready to explode, I had to stay flat if I sat up oh my gosh. All they did was drugged me up sent me home. Next morning same thing, we must of made four or five more ambulance calls and overnight stays but no MRI done just blood work. Anyways two weeks of doing this torturous back and forth , they finally did an MRI and a spinal tap, I had a spinal fluid leak,I had to have my third surgery to repair and all this strange stuff draining fluid off of me into a tube. I ended up twenty three days in the hospital , I guess one of the stitches had came undone from the patch. Every since Ive had a burning sensation on the right side of my face, top of my head to my ear down in my shoulders, sometimes its so bad I want to die. When the weather changes Im so sick. So the fourth surgery was exploratory to see if the previous surgeon had grabbed it up in a stitch or if something was wrong with it, I guess going by doctors words , there was an artery wrapped around it. Well that surgery has made my pain ten times worse and I am at my whits end, nerve blocks all the time it seems like. Well we cant do anymore and my only hope now is a deep brain nerve stimulator ,since I wrote this I have had my visit with the psychiatrist and I have passed and will be working with a wonderful doctor ,out of the countless ones Ive seen in the pass twenty five years of dealing with headaches from hell. Dr. John Swofford, DO, Indiana interventional Pain Service. Located at Community Surgery Center East. 317-355-7029 5445 E. 16th street Indianapolis , In. 46218, he has no idea I have mention him in my letter about him but I hold him in such high regards as being able to help with pain with nerve blocks , besides the brain surgeries Ive been having back surgeries as well, a total of five in three years, and he has done so good on relieving my pain, because I had some sort of joint fusion where they put these pin like things in there, well my bone was so deteriorated it shattered and the pin went into my ligament , the pain was horrible so he was treating my head and my back at the same time. I have also found out my brain aneurysm did not coil right and also has grown, Ill be having surgery for it on October 29,2013, so this is my story it may be messed up in parts and Im sorry I cant help it. But this is what Ive done and would love for you to join me and be apart if my group Chiarians Swap Socks, this is dated Oct. 16th, 2013, my goal is to make it to the Ellen show, she is most likely one of the most watched Talk Show Host,and she inspires me so much, I can not wait for 3pm to come, it doesnt matter how much pain or depression that I am dealing with that day, for that hour, she takes me and Im sure others to a joyous place, its like my pain doesnt exist, and I cant think of a finer woman I would like to spread awareness with. She had given someone socks and thats when the idea hit me , they would fit in and envelope and be cheap to send I was thinking maybe two stamps but it was more than that $2.07 average a package,I was going to just write the name of my group on the envelopes since it had Chiari in it, and a friend that I had made because of my group Laura Setter said why dont we decorate all over the envelopes and it has been amazing to see the artistic work everyone is doing, some the whole family has gotten involved into doing,we all have worked so hard searching for a cure and a better way to educate doctors, but all of us would be honored to have my story covered by anyone willing to share it to inspire others , you to can do it, I done all this from the couch and from a smartphone because my computer broke , and I feel so much pain daily but knowing my package just might make someones day pushes me and others. Most of us this has become one big family. There is so much love traveling the world in an envelope. Chiari sucks we need a cure, we stand together and we stay strong because of each other. Because of Laura Setters idea of decorating the envelopes all over I think really helped this group become what it is, I hope one day to be in good enough health to go non- profit and be able to help raise more awareness in a even bigger way , Chiarians Swap Socks My address is Teresa Taft 5901 E.Washington St.Apt22 Indianapolis,Indiana 46219 Im always looking for someone to swap socks with Ive made it already on the front page of the Brazil Daily Times, Ive sent socks to Canada, tomorrow I am sending to South Africa, and London , Ive reached all fifty states and such amazing things are happening because of this group, the things people are doing to help is amazing, would love more but things will happen as they should. I have spent about $1000 of my own money doing this and have sent going on close to 220 packages as of today I sent 51 packages out You can reach me either Facebook or Google Chiarians Swap Socks / Teresa Taft or email hoyboynoypi_pinoy@yahoo Come learn about Chiari you could be that 1-1000 Did you know your migraines or depression might be Chiari, it has so many symptoms besides severe headaches, loss of balance , the list goes on and on please join the group and help raise awareness with us for your cause and ours which maybe yours and your doctor isnt educated to know Also known as Arnold-Chiari Malformation or ACM, this is an ucommon structural condition affecting the cerebellum. Essentially there is extra cerebellum crowding the outlet of the brainstem/spinal cord from the skull on its way to the spinal canal. This crowding will commonly lead to severe headaches, neck pain, loss of balance, tingling in the arms and/or legs, stiffness, and less often will cause problems such as chronic coughing, difficulties with swallowing, and choking. Often the symptoms are made worse with straining. Untreated, the chronic crowding of the brainstem and spinal cord can lead to very serious consequences including paralysis. In addition they can lead to the development of syrinxes which may further injure the patients spinal cord and function. When the diagnosis is suspected the study of choice is an MRI scan. These malformations are very difficult to see on CT scans and impossible to see on plain x-rays. There are many ways to treat Chiari malformations, but all require surgery. The basic operation is one of uncrowding the area at the base of the cerebellum where it is pushing against the brainstem and spinal cord. This is done by removing a portion of bone at the base of the skull deep to the neck muscles as well as often removing a part of the back of the first and occasionally additional spinal column segments Sent from my iPhone
Posted on: Tue, 22 Oct 2013 03:01:41 +0000
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