Hey everyone, sorry I havent posted... things have been crazy... we have had the stomach virus here (me n emma) but now hopefully it has LEFT the building and no one else is going to get it HOPEFULLY! Tomorrow (hmmm TODAY) Peyton has her first cardiologist appt since weve been home. I am looking forward to hearing what they have to say abt how AWESOME she is doing!! ;-) Then Tuesday we go to Dallas for 2 appts: her follow up w the neurosurgeon (HOPING we can stop pumping the shunt but that may just be wishful thinking) and also her follow up w the surgeon who did her g-tube, hoping she can get the button that day which would mean no more giant roll of gauze taped to her skin all the time and not having to be so scared Emma will grab that tube n yank it out. Although I must say Emma has been really great so far and just the sweetest thing when it comes to Peyton. She even says Peyton I have GOT to get it on video... so precious!!! Thank you to all who continue to keep us in your prayers!!
Posted on: Fri, 25 Apr 2014 06:38:59 +0000