Hi ~ People have been asking how Ive been doing. I havent been posting many updates because I have been hoping and waiting to turn a corner since I still had been having more than expected pain and other symptoms. No new / better news. I wanted to wait to have something better to report! No reruns!! Just a week ago Sunday Doug Robinson had to take me back to the ER for the 2nd time since my surgery because my pain was getting worse. Again. My dear friend Josie Moxie R convinced me to go. Im glad she did. I was hesitant because, well, I am SO very tired of the hospital and having setbacks. But we went nonetheless. They diagnosed it as a Crohns flare in a different area of my colon. The sigmoid. That area has come up now 3 times in the last 16 months, however, no one has been concerned about this or even talked to me about it. Im not sure they even looked at it during surgery honestly. It is discouraging because that means the surgery to end all surgeries and pain and symptoms didnt solve all my problems. It means Im still on this uncertain health, and therefore life, roller coaster. I cant seem to get off this ride. So tired of this ride... Keep on keeping on... They prescribed me prednisone. It has been helping. Thats a HUGE relief! Plus, Ive been doing Reiki and other energy work, so the combo of the 3 has made big improvements. The last 2 and a half days have been SO much better than any other day after the surgery. I dont know if 2.5 days constitutes a corner turner, but I am hopeful and my spirit is brighter. YAY! And WHEW! I have been feeling so much better that I started sorting through the mountain of medical bills and bills in general. I calculate that Im somewhere around owing $15K from the leftover bills from last year and new bills from this year with all this medical upheaval. Im hoping I can still fundraise to get these bills paid. I am praying for a miracle. Hopefully the power of love and social media will save me too. Praying. I have been supported by so many of you throughout this crisis. I am just so grateful for all the love and support. I have been pretty much couch and bed ridden this past 6 weeks / feeling bad until these last couple of days that Im terribly behind on thank you cards. Please know how thankful I am for the financial support, cards, books, food, cat and dog food, visits in the hospital, house cleaning, jewelry, prayers, kind words, Reiki, love - EVERYTHING and EVERYONE
Posted on: Tue, 02 Sep 2014 14:03:29 +0000
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