Hi everyone. Shaes mom here. Thanks for all of the well wishes. I am home now after my anterior/posterior spinal fusion. The road to recovery is kind of long but I am happy to be here. Welcome to all of the new likes to the page. I just wanted to take moment and go over a few things about us. My daughter, Shae, was diagnosed with Wegeners/GPA in 2012 at the age of 10. The road for her has not been easy and, when she found that so many others were also affected, she felt compelled to do something to create a change. She has started this non-profit with that in mind. Many of us in her life have rallied behind her to support her goals and this cause. First, there is Warrior Wednesday. Initially, it was to be one day...everyone wore red to support Shae when she was first diagnosed and battling hard in the hospital. Shae saw the response and thought we could expand on that. Now, every Wednesday, we ask that people wear red and talk about why so that we can get the word out. I have seen so many people pick this up on social media...some who we have not ever spoken to. That makes me so proud and hopeful that she can achieve this goal in her lifetime. We also have a yearly Warrior Walk. We encourage people in cities all over the world to come together and host their own walks on the same day in unity. We have so many more ideas and hope that you will hang in there with us for all of this so that we might make a difference for all of the warriors out there. Know that sometimes we are quiet as Shae is still fighting this ugly disease. I want to extend to you all our love and heartfelt gratitude for being with us thus far.
Posted on: Sat, 15 Nov 2014 19:52:29 +0000
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