Hi, iv been told by London neurological hospital that iv got - TopicsExpress

Hi, iv been told by London neurological hospital that iv got cervical dystonia, but can anyone tell me the symptoms, I no what Im feeling & the pain, but iv also got another rare neuro condition called hyperekplexia (HpX), & a couple of other conditions, my neuros cant work out which symptoms match which illness as some are very alike, iv been like this over 10 years, I have very bad back & neck problems aswell, very painful, my spine is screwed, was told if I didnt have these conditions Id definitely need surgery on my back, but as Im sick, they wont operate as its too higher risk off paralysis, Im already in wheelchair if I go out, at home I sleep in the sitting room as I cant get upstairs. A lot of this is due to the HpX, but my neck is extremely painful to the point the pain killers dont work & Im in tears. Can anyone describe symptoms of cervical dystonia please, thanks

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