Hope everyone had a good Veterans Day. Today is special because Haydens grandfather was in the Air Force for 22 years and Im so thankful for him and every man and women that has served or is serving. Hayden has been doing good. Her high pitch noises have gone down but we still have a ENT appointment Monday. She had OT today and sat in the turtle ball all by herself. Its a big ball cut in half and Hayden can sit in it and rock herself. She has been working on abb exercises to help with the low muscle tone. Hayden had a great Halloween and loved picking out candy. She was Queen Elsa (of course)!! Poor thing took another nose dive so she has her Rudolph look back. She has her 18 month appointment coming up soon. I wish there was a BWS specialist here. Some days I feel like we walk into her doctors and they are blind sided with hayden. Or when I have a concern they say oh she will be fine...yeah but for a Beckwith kid is that okay....thank goodness our ENT and the hospital we take her too are more familiar with it than others are.
Posted on: Wed, 12 Nov 2014 03:02:11 +0000
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