I LOVE this! My favorite quote from this... As a parent of a child with ultra rare disease, youre really the first and last line of defense. So if you arent going to be passionate about it and youre not going to be pushing it, no ones going to be making that fight for you. So so true! #neverstopfighting Another good one... Rare only means the future has not yet been invented. So much has changed in science and we are writing the future with incredible research in the area of genetics. So inspired by what the future holds for the rare disease community!
Posted on: Wed, 03 Dec 2014 16:47:44 +0000
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