I am sick. I have the flu. I was going to complain about having to do a full bath and dressing change tonight. Then I thought of my dear friend. You see, my dear friend has adopted multiple children. Multiple children with severe EB. More than you can count on one hand. When I start to wallow in self pity...I think of her. When I see the piles of laundry, the cleaning,disinfecting, and bandage cutting....I think of her. When I am dosing the medications, pouring the tube feedings, preparing the special diet, organizing the dressing change room....I think of her. When my heart aches from witnessing my one child with EB suffer physicall and emotional pain, when I am anxious about trusting others to care for Charlie while he is at school, or when I am feeling guilty for not spending enough time with my healthy children...I think of her. I think of her everyday.. My dear friend inspires me to get thru the day and she doesnt even know it. If she can do it....so can I. People may think or say, well....adopting children with this disorder is a personal choice. I will argue that when a person is presented with this choice....it really is no choice at all. #causethewave and #healeb ebresearch.org
Posted on: Thu, 22 Jan 2015 04:20:35 +0000
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