I guess that Ive held on to the news long enough... and its time - TopicsExpress



          

I guess that Ive held on to the news long enough... and its time to pass it on. My biopsy results have come back. My Hodgkins lymphoma has returned. This apparently doesnt happen. Cancer doesnt come back this fast after a stem cell transplant. My doctors really dont seem to know what exactly to do with me, but we are coming up with a plan. My new stem cell doctor is in communication with other doctors around the country to come up with the best possible plan for me. Right now, it looks like Ill be starting a drug that targets Hodgkins cells specifically and doesnt have an effect on my healthy cells. It does cause neuropathy, which is potentially permanent. I will be on that drug as long as I can stand the nerve pain. I will also be starting on some sort of T-cell therapy to boost my cancer-fighting cells, but the exact therapy has not been determined. There are a few different options for it. I will likely end up doing the T-cell therapy in Houston, but I dont have the details on that yet. I am running out of options, but the options currently being presented are good. I am getting pretty sick pretty fast. My energy is dropping, but my will to fight is not. I am at this horrible place of trying to recover and rebuild my health and my entire life, while being further depleted and facing a lot of uncertainty. I appreciate everyones care and support... and... here we go again, team!
Posted on: Thu, 11 Dec 2014 04:14:02 +0000

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