I had a great weekend. However I have started have my melt downs - TopicsExpress

I had a great weekend. However I have started have my melt downs again. That is what we call it when I start crying and getting really loud for no apparent reason and Im hard to calm down. Im starting to have more physical and neurological changes in the last couple of months. Im also not wanting to drink anything by mouth again. Ive been having to take my formula via my feeding tube pump. Hopefully I can get out of this little rut soon. However in spite of everything Im still smiling and always doing what I can to have a good laugh throughout the day.

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