I have a request from you all, and the reason Im asking is because - TopicsExpress



          

I have a request from you all, and the reason Im asking is because Ive been wondering about this for awhile, and it was confirmed for me a couple of days ago. One of my biggest fears is that Owen will suffer in any way, shape, or form because of the extra attention that is required by Easton. Ive written about this a bit before, and I was hoping that Owen hadnt picked up on the being shuffled to relatives homes when Easton is in the hospital, or that he goes to school each day for half the day and Easton stays home with Mama for therapy and doctors appointments. Granted Easton isnt having much fun (more so at the doctors appointments because right now most of the time he enjoys therapy), but Owen wouldnt know that side of things. All he knows right now is that Easton stays home with Mama all day, and he goes to school. He is also aware of him staying behind when we travel for Easton. This was made painfully aware to me the other day. We are headed to the OI Conference in Indianapolis next week. I was talking about it on the phone with a friend. I hung up the phone, and Owen looked at me with sad eyes and said Mama, do I get to go with you and Easton, or is it just gonna be Easton and you? I had to work hard to keep my composure. I realized then that he knows. He has also had some behavior issues at school after this last surgery. It happened for the surgery in April too, but I chose to believe that he was just having a rough week, and maybe it had to do with the attention his brother had been demanding, but more than likely Owen was fine. I dont think the repeat of crappy behavior is coincidence. He knows. I told Owen that he is going with me and Easton to Indianapolis and his little face lit up like a Christmas tree. He is SO excited, and he keeps telling everyone he is going to Emilyapolis. Heres where my asking a favor of you comes in, and I ask not just for my family, but for all families who have a kiddo that isnt typical, and it is visually apparent. When we are out and about so many people talk to Easton whether it be because he is little, or in his wheelchair, or in splints. This is awesome, and Im so happy that he isnt being stared at unkindly, or Im not being stared at unkindly although that has happened too especially when he is in splints. However, please do not ignore Owen. He knows. Ive seen him act out while someone is oohing and awing over his brother. Ive seen him look down at the floor, or try to get the persons attention only to be paid attention to as an afterthought. This goes for our friends and family too. We go somewhere and Easton is the immediate attention grabber even around those that are family and friends. I also ask you this for Eastons sake. He doesnt need to think that the world revolves around him. Again, please know that I am not ungrateful, or dislike anyone speaking to Easton, or any of us for that matter! I love it! I especially enjoy the opportunity to raise awareness of OI. I just ask that you speak to Owen too, and dont act like he is invisible. Im doing my darndest, just like any parent to raise two well adjusted participants in society, and it takes a village. Please do this for us, and any other parents who have kids who arent typical. Thank you! : :Love and Hugs from us to you!
Posted on: Fri, 25 Jul 2014 21:38:51 +0000

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