I know an outstanding young man who was born with a very rare - TopicsExpress

I know an outstanding young man who was born with a very rare degenerative disorder, Pelizaeus-Merzbacher Disease (PMD), which is the subject of this very touching & informative video. He is a funny, handsome, kind-hearted 16-year old who is trapped in a body that rarely moves the way he wants it to, and that is often in pain. Yet, hes *always* smiling and happy to see me! He is my weekly reminder that life is to be enjoyed, not just endured! Im posting this video in the name of raising awareness about a rare disease that could really use donations to help fund research. If you want to help, please consider donating to the PMD Foundation! pmdfoundation.org/

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