I think we are going to call it an early night. We didnt get much sleep last night. Sophie kept crying out. I did everything I could think of and then it dawned on me that her tummy may need venting, so I vented it and you would not believe all the air she had in her little tummy. Poor baby I felt so bad for her, but after it was all out she finaly slept peacefully the rest of the night. I have had her off of O2 all day and she has been able to maintain her stats without it :) She is also starting to sound so much better in her lungs. Please keep the prayers coming for my Princess and please continue to help us raise awareness for NKH. We hope that you all have a Blessed night. Love, Sophie and Mommy
Posted on: Mon, 29 Sep 2014 00:43:58 +0000
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