I tried to make this super short. Its still much better than yesterday. What weve learned about Noah, is if you want to know if he has a sore throat, it needs to be addressed with two questions. 1. Does your throat hurt? No. 2. Does it hurt when you swallow? Yes. Every. time. Compared to the throat pain he experienced with transplant, he probably thinks his answer is normal. They say it feels like youre swallowing needles and its treated with morphine, for weeks. We dont think theres anything too serious going on. In a bone marrow transplant patient, a fever is considered an emergency and results in an automatic hospitalization. They think he just has a bug of some sort. He seems to respond to the antibiotics. His fever was gone by 3 a.m., but I think we still have to stay another night, even if he doesnt spike again. Soon after he went to sleep, he woke up all wacky. He seemed to think he had a needle in his hand. When did I get this?!? WHEN DID I GET THIS?! It seems a little early on to have hospital psychosis again! But he settled back down pretty quickly. Now hes telling his friend, Andrew about his psychosis. Its hilarious. At midnight, a nice doctor came in, and helped me get Noahs medication schedule back on our home schedule. It was so nice of her because I was concerned about doing it safely. Its in the computer now, so it should be done correctly while were here. She also made sure Noah got his formula, and the nurse checked with me to make sure it was right. He actually had the pediatric version at first, but then went back for the right one. I stayed up until after 3 a.m. to make sure everything was done right! And so far, this experience has been a million times better than two days ago. Meanwhile, Steve has admitted that in the hospital, Im the one you want with you. And he went home last night. I think this is payback for earlier in the week! lol Okay, forget everything I just said. Dr. Barrett just dropped in. He has Epstein-Barr Virus (mono). We will be here until at least tomorrow while they wait for the number of the virus. The good news is, he caught this from his donor, whod built immunity. The cells in Noah recognize it. Im not terribly alarmed. I listen to all the other kids in clinic, as the doctors talk to them about managing their EBV number. Its interesting, I used to believe if either of my kids ever caught mono, that Id start screaming and throwing things. And cry and faint. Because mono was life-altering for me. Right now Im just like, okay. Perspective. Thank you for praying, everybody. :)
Posted on: Sat, 08 Nov 2014 15:22:18 +0000
Trending Topics
Recently Viewed Topics
© 2015