I was all about focusing on the positive for my Thanksgiving post, so I didnt mention that Kalebs had a pretty rough week and a half. We found out he had Enterovirus back when we took him to the ER...this scared me to death because of all the truly scary cases all over the US. But thankfully, Kalebs case wasnt too bad...until it turned into Hand, foot, and mouth on the 3rd day. I dont know if youve seen a case of HFM, but its truly awful. It looks(and probably feels) like chicken pox, but he only had blisters on his hands, feet, knees, inside his mouth/throat, and booty. Theres no medicine, just Tylenol/Ibuprofen, Aveeno baths, calamine lotion, and hours of Mama love. He was finally feeling better at the end of the Thanksgiving weekend, but his skin is peeling off everywhere, and hes going to lose several fingernails. Sigh... Of course, he was the little trooper he always is. He was still running all over the place, playing all day, and never wanting to sleep. The rest of us would be on the couch unable to go on, but not my kid. Im so grateful hes feeling better, praying theres no more where that came from, and hoping this doesnt leave terrible scars. He hasnt been contagious for almost a week, but Baylor OCH hasnt let us come back to therapy yet ...probably because it looks so bad. So weve been having mommy therapy at home. Guys, hes eating great! Hes eating a whole container of bananas for me, at least twice a day...and he seems to like it. He also tried pizza this week, and just kept licking the crust and making mmmm sounds. Too cute. Weve had his ARD to officially homebound him for the next couple of months. He loves school, and his teacher Miss Katy is the sweetest person on the planet, but we have to keep him well/safe for a while...I say on the tail end of Enterovirus and Hand, foot, and mouth. Yep, doing a great job so far. Tomorrow we see his metabolic bone specialist at Scottish Rite. Weve never been there, so Im a little nervous. Im a lot nervous about what his doctor will say. Im hoping hell have an answer for why Kalebs phosphorus has been so low for months, and I hope he can help us feel better about this infusion. I think weve done everything to prepare him for it, Im thinking Nugent approved him for it, and I expect hell want us to do the first one soon. I want this infusion to be the answer for Kaleb, but I also want to feel good about it. Prayers and positive thoughts for his morning appointment would be appreciated. Well be getting our Christmas tree this weekend, and Im so excited! This is my favorite time of the year, and we have so many fun things planned for Kaleb. Everything was so stressful last year with our 2nd opinion trip to Boston mid-December, and the huge ice storm...it felt like we barely had a Christmas. Not this year. Bring on the Christmas music, the shopping, the cooking, family, and the Christmas pjs. Im ready for every single moment with my boys. Thanks so much for thinking about us, praying for Kaleb, and loving him too! One day, one hour, one minute at a time... The video was taken during one of our home feeding sessions earlier this week. Strange but true, the sucker is part of his feeding protocol. Hed just discovered that his bubble gum sucker tastes exactly like his beloved Amoxicillin, and man, was he excited. How I love this kid...
Posted on: Fri, 05 Dec 2014 05:10:53 +0000
Trending Topics
Recently Viewed Topics
© 2015