I was extra depressed today...i didnt watch TV didnt leave the room didnt eat much just laid in the bed and watch my son have seizure after seizure . Its very difficult and heartbreaking to watch . Jaime isnt making the progress I had hoped he would...weve been in one hospital or another for almost 3 weeks, one doctor tells you one thing, five minutes later another doctor comes in & tells you something else. They called his neurologist, and were told because jaime isnt pediatric That he cant possibly be a patient of the doctor. THEY never asked for any information to verify who he was and they never called the doctor to find out that he is in fact his patient. Clearly he must be his patient because hes already been to the hospital twice to see him. How can that doctor dismiss us without even bothering to ask the doctor first? On the upside we had good nurses today attentive, knowledgeable and caring. On the downside the food here is pathetic..I cant believe they had the nerve to call themself a cafe outrageously priced and the food sucks. But still I knew something else was wrong, just not feeling right I just didnt feel right, I dont know I just couldnt put my finger on it...... then I realized the date, todays date was January the 5th, today would have been my moms birthday.....i love and miss her so much, sometimes its unbearable. I just hope and pray they figure out what is going on with Jaime....i dont know how much more either of us can take....especially him... how many seizures is one too many??? I hope I dont have to find out. Happy Heavenly Birthday Mamasita, not one day has passed that I havent thought of you.
Posted on: Tue, 06 Jan 2015 06:20:43 +0000
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