I was reading through a few blogs/posts that I follow today and - TopicsExpress



          

I was reading through a few blogs/posts that I follow today and something hit me. Even as the mother of a survivor there are things that are largely unknown to me about TBI. The stories I follow each explain different circumstances and outcomes, and they are each in their own way both heartbreaking and inspirational. I try to follow them for selfish reasons, like hoping I can remind myself that some of my feelings and frustrations are normal. I also follow them because I genuinely care, I care so much deeper than I ever imagined because I can relate to every word in some way. I follow them because I learn from them. I celebrate with other families and I weep with them as well. My heart has been stretched, and yet there is still plenty of room for it to grow. Some people are fortunate to have a team, like Taylor did, who from early on rallied around and helped. An old friend from high school is surrounded by support in his team, called, Team Joe. Our sweet friend Kira has a Facebook page called Praying for Kira Kolbe where progress, concerns and praises are updated. There are some pages with extensively large followings, whose stories broke and touched many, many hearts...the little boy in Georgia, Tripp, who excels and improves right before our eyes...the young man with the tender eyes who was brutally assaulted at WVU, whose quality of life has been forever altered...and most recently the story of the vivacious school teacher whose injury was the direct result of a random, unexplainable act. Support is so important, and sometimes for me it has felt vital to my own survival. It is important to everyone. It deeply grieves me that some families feel invisible. As I was reading one post today the parent was discussing what is most important to him. He said it was keeping his son relevant. He does not want people to forget what he has endured. He does not want his son to be forgotten. Sometimes from our vantage point it seems like life is just moving on for everyone else, while we stand still, often stuck in the frustration and challenges of our circumstance. Traumatic Brain Injury Support and awareness matters. Our survivors matter, those who many know about and those who battle with only a few people cheering them on all matter. When you share a page, or like a status, it promotes awareness! We have gained so much knowledge about other diseases, medical diagnosis and issues because of funding, walks, rallies and legislation. All of these things play a part in the TBI community. One of the reasons this page continues is not simply for Taylor. It is to keep the awareness of Traumatic Brain Injury and what it means in peoples minds. Love wins!
Posted on: Fri, 26 Sep 2014 23:46:37 +0000

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