I wish the good days lasted longer then the bad days. Weve had - TopicsExpress



          

I wish the good days lasted longer then the bad days. Weve had nothing but great worry free days but theyre gone for now. Max is slowly showing his pattern of needing more oxygen, no sleep and small retching episodes. I dont know what to make of it. Its absolutely so frustrating. And even though hes very happy and looks good, his patterns have showed that this leads to hospital time! And the thought of that makes me sad. His poor little arms are still bruised from the last time. And I know, yall will tell me to stay positive and keep the faith and of course I will but its still hard not to get in this worry blah mood. I just want the good days to last longer then the bad ones😢
Posted on: Wed, 23 Jul 2014 12:49:51 +0000

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