If any one of you have seen my scrappy side, you know it is not pretty. I am often quick to jump to the defense. Here is a little inside look as to why: EVERY day, I am fighting for my CF kids. Whether it is to get coverage for a certain medication, to get proper treatment, to get an appointment, to get scholarship help for school, the list is endless. Today, for the ( insert huge number here) time, I have appealed a rejection for Jerod to get a new vest. He is moving away from home,will be on a bus going out of town with a baseball team on a weekly basis, and living in a small room. He needs the small vest! He cannot survive without doing these vest treatments. His vest does work ( albeit seemingly not as effective as it did 12 years ago) but there is no way he can travel with that 50lb very large unit. All I keep hearing is that we can lease it, buy ourselves, etc. Well, we are TOTALLY borrowed out. We cannot finance one more thing. The amount of money that we make is deceiving compared to all of the medical bills paid monthly. I feel like I am a dog chasing my own tail!! Sorry for the rant. I just feel that the US health insurance has reached a new low. Please do not turn this into a political argument. I do not have the energy. I am just saying, yes, I get very scrappy when I am told that the NECESSARY medical equipment that my child needs is not worthy of my health insurance.
Posted on: Tue, 05 Aug 2014 16:53:16 +0000
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