Ill tell you that as a parent, it is tough to get your head around the fact that you have a child you cant help. We special needs parents are forced to rely on others to provide the tools our kids need to reach their potential. Here. I am handing over my heart and my soul, my absolute everything. I dont even understand exactly what it is I can do, but make it the best. Please help my child. I think Its debilitating, really. Try to help my son and I cant. I wonder if you understand the importance, the weight of this. I wonder if you know how much of a toll this takes. Did I happen to mention the tremendous strain we parents are under in all that training? Were fragile. Were scared. Were struggling. Were hopeful. Were grateful. Were really, really tired. Do you know how much we have to fight for our kids? The biggest surprise to me in this special needs parenting world was how much I have to advocate for my son to people who should be on his team. Schools, therapists, doctors, insurance -- you name it, it was probably a battle. Do you think I dont know that you roll your eyes when I worry so. I do. Trust me, I would rather be the fun mom, the awesome mom, the mom that everybody likes. But my son cant afford that mom, so I am the mom who gets him what he needs. It takes an awful lot out of me, and some days, I dont greet you at the door with a lot of energy. What you might think is crabby is really just empty. I want you -- no, I need you to understand this. I need you to understand that every morning I wake up and hope for a breakthrough, and that every night I go to bed worrying about my sons future. This is a lot of weight to carry. Not to mention how I worry about the twins and if I might have it happen all over again.
Posted on: Wed, 07 Jan 2015 06:35:23 +0000