Im headed to DC again tomorrow to continue to advocate for all of our sons/daughters with Duchenne. This time we are excited to be holding a congressional briefing on DMD and the FDA- very important time for this as the first drug for DMD may be coming up for approval very soon. can I ask every one of my friends to please, take a moment tomorrow and call the health LA at your reps office and invite them to attend the briefing? Thank you so much for your support! here are the details: Rep. William Keating (D-MA) is hosting a Congressional Briefing on Duchenne and the FDA. All U.S. Senate and House offices are invited. Please call your U.S. Senators and your Representative and urge them to participate. We need their help to encourage FDA to act now to make lifesaving treatments available to boys suffering from Duchenne. Here are the details: Date: Tuesday, July 9 Time: 1:30 PM Location: 2456 Rayburn House Office Building To reach your Senators and Representative, call the Congressional Switchboard at 202-224-3121. tell them why DMD treatments are important to you...
Posted on: Mon, 08 Jul 2013 00:40:16 +0000
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