Im overwhelmed by all the support and advice weve received since setting this page up, Ive just this minute received an email to say Addensbrooke will now perform a MRI scan it will mean us traveling and Charlie will be under general anaesthetic, but this we feel is the right thing to do, they sent us away at the beginning of January telling us all the tests we do have been done, we will see you in a years time. But I will not sit back and let this destroy us, We are finally getting somewhere, this is with the help of your guys please keep sharing and raise awareness for this rare condition, thanks again Charlies mum
Posted on: Thu, 30 Jan 2014 13:35:56 +0000