Im so sick of this disease & what it does to all the Mito kids out there! There are so many mito kids getting so sick right now & the majority is for stomach motility issues. Now this am Autumns J tube got clogged & Ive been working on it for literally 4 damn hours! Ive tried everything! Now Im going to have to either take her to the ER for surgery or try to see if I can get her by till next tues or Wednesday & take her in to Mission for a change! AHHHHHHHHH!!!! I cant get it undone & you can tell its bothering Autumn as well. Im now having to put everything in her G but its not moving & Im still working on giving am meds. Her seizure med that we give at 7:30 still has not moved! Her pain meds have not moved! Her vitamins & supplements have not moved! She is agitated & in pain bc these meds cant get in her system to absorb!!!! MITO I HATE YOU I HATE YOU I HATE YOU!!!!!!!!! I CANT STAND THIS!!!!!
Posted on: Sat, 13 Dec 2014 18:59:01 +0000