Issues with my tissues, a documentary about a woman with the same - TopicsExpress

Issues with my tissues, a documentary about a woman with the same craptastic diagnosis I have. Shes aiming to walk a marathon for awareness. I cant even walk 1,8 kms without great pain. A part of me says shes mad. But the other part of me admires her willpower. No one sees us! Research gets very little funding because we are to few and I ts inherited, so no juicy cure to discover and make money. So thanks Lara. Maybe your efforts will at least make people aware enough to take us seriously. I hope so! youtu.be/01Cqzpw085c

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