It is so frustrating not knowing when chemo is going to start. Just like my daughter took a wild guess for her trip out here and missed perfection by one or two days, my sister is arriving from Boston on the 16th for a week and I don’t know if I will have started treatments by then. Both tried to “guesstimate” dates in order to help me through this mess. Oh well. At least we’ll have a little time together. We don’t get that very often. Still having trouble with my ribs hurting but it’s so little that sometimes I don’t take the Tylenol. I goofed last night and didn’t take any before going to bed and the minute my back was on the mattress I knew I’d made a big mistake. I had to wake Jim to get some for me. He has been such a patient nurse through all of this that it blows me away. Maybe I’d like another 42 years with him? Well, no - we’d be too old to notice. Let’s at least make it to 50 years! I’ll be 80 and he’ll be 86. I think our brains will still be functioning.... at least a little! It is so hard learning to live with this carb counting crap. I suppose all diabetics get frustrated at first - trying to learn how to eat right and not have sugar spikes that makes you break out in a sweat and feel light headed. That is an awful feeling! Four times around our small yard without the tether today and oxygen still at 95%. Yea! And all the other excercises - but not too vigorous. I learned my lesson there. I still can’t get over the difference in pitch between saying my eeees and ahhhs. The ahhhs are low pitch and the eeees are almost a squeak. I WANT MY VOICE BACK! Oh wait. Have I said that before? Okay, back to the barge. The sun is still up and so is the shade cover. My Nubian guard will keep me cool with his fan and the rest of the crew are doing their jobs. I shall rest on my chaise with lots of pillows and drink Thai ice tea and eat black grapes. Then we leave the shore to float down de Nile and I don’t think about anything but the Here And Now. Thank you for caring. I love you all.
Posted on: Mon, 12 Aug 2013 00:57:31 +0000