It makes us feel so loved when we are asked for an update :) Conner is doing okay. We have to go back down on his pump rate to 50ml/hr which means he is on continuous feeds again because he was vomiting at 75ml/hr. hes having about 10 spasms a day which isnt alot but still effects him pretty bad. Sometimes he has a grand mal but we have been really good about keeping things quiet and scent free so that helps I can tell. Conner keeps sitting up for short periods of time. His back muscles are so much stronger and I can hold him on my hip now! I love it! Also his PT is ordering him a standing positioner so he can start working on standing up on his legs. I just love when he has physical therapy. His cuddle bug wheelchair should be here soon I cant wait to get it!!! This week has been pretty rough. Last Thursday Joel and LaCie were in a minor car accident. They were rear ended and it just stressed me out so much that my legs decided to not work again soooo taking care of Conner and LaCie have been impossible for me obviously so while Joel works I have to have someone with me constantly I just hope by the end of the week ill be walking again. But Conner is doing good which is a relief :)
Posted on: Tue, 29 Oct 2013 19:45:30 +0000
Trending Topics
Recently Viewed Topics
© 2015