Its been 3 years since I was diagnosed with GBS (Guillain–Barré syndrome) a debilitating neurological disorder. March 27th 2011, it took 3 days to figure out why I woke up one weekend morning feeling numb head to toe, pins and needles, the same feeling all over as if you sat on your arm or leg and it feels asleep but all over my body. It was absolute hell, 20 days of hospitalization at Harborview, and countless follow-ups with several neurologists. Im a survivor and Im better for making it through such a hellish ordeal. My muscles had atrophied and I was on a feeding tube for 3 months. But now I count myself lucky to be able to lift my arms above my head, live on my own without medical supervision or care, and I can eat regular solid foods. Guillain–Barré syndrome sucked the life out of me and I get tired very easily on a daily basis. I still have that feeling of numbness from when my immune system attacked my nervous system. Sometimes my nerves crackle and pop like a nervous tick or itch that just wont go away. Im learning to live with it and its made me a stronger person that can cope with all kinds of nonsensical pain. Every neurologist that Ive ever seen is very curious about this condition because its so rare, and they cant do anything about it. They just ask me what its like to have Guillain–Barré syndrome. I figure that I have a choice, I can mope about and feel sorry for myself and feel like a vegetable, or I can make the most of it and enjoy life. I choose to attempt to always look on the bright side of life and just have a great sense of humor about everything. If youre curious about reading up on a horrible awful autoimmune disorder, heres more info: en.m.wikipedia.org/wiki/Guillain–Barré_syndrome
Posted on: Sat, 29 Mar 2014 02:35:53 +0000
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