Its been a pretty tough day.! I wish I could update its been a great day but thats not happening today hopefully soon though! I try my best to keep our updates positive by sometimes it is hard too. But I do the best I can! Well like I said our day was pretty tough. Thankfully we did get a few good moments although they didnt last very long nor all day but they were great to have. I honestly feel like our bad days are outweighing our good days. I dont know if this is our new normal or what but the last month and a half has been a tough time and a meaner fight! But we have faith and hope so we are fighting right through it. We did do our errands today and hung out around the house (much needed). We have a hectic week ahead of us...I have to make some phone calls tomorrow morning as well. I noticed that when buddy drinks something her ears and face gets bright red like she is burning up with a fever but she really isnt. She also gets really irritable and clammy. She also has a ton of thick thick mucus constantly and its worse after she drinks or eats soup broth. We are still getting fluids every week due to her stomach draining a ton. Her stomach didnt improve at all from a draining stand point nor did the discomfort I honestly think something crazy is going on and we arent sure what we have to have a few motility test done and Ill hopefully find out when that will be this week. I honestly feel like we figure one thing out and something else comes up or gets worse. We will never lose hope and we will keep fighting whatever it takes! Well thats about it for tonight! Your kind words prayers and support is what helps keep us going through these difficult times. We really appreciate everything! Its amazing coming on buddys page and reading all the amazing comments and messages! Thanks for being apart of this amazing journey! We will continue to climb this mountain and just keep swimming! Ill update in the morning! Jocelyns strength is like no other! I feel like she excepted the life she was given. We never imagined her life being this way but we learned and we still are learning from her! I wouldnt want to change anything she is amazing and this journey just makes us stronger! Jocelyn is incredible! Goodnight to the most amazing prayer warriors! Tomorrow is another day and Im praying for a decent day! Nighty night. 💜 I am so blessed to be Jocelyns momma! We love you all!
Posted on: Mon, 19 Jan 2015 01:56:33 +0000
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