Its been a very stressful, hectic, emotional, unknown, and not the best day at all! Well our morning started off horrible and the whole day was not good nowhere close to good....😔 There was some miscommunication between the GI suite buddys GI doctor and admissions, Apparently buddy wasnt scheduled for a endoscopy or a scope for tomorrow and her Gi doctor did put it in the system. We will be admitted tomorrow for sure as of right now we will figure out when surgery will be while we are there because we cannot wait and it will be easier to get her in the OR while she is there. What she will be having done is buddy will go in tomorrow for fluids because of being NPO (no food or drink) her sugar drops very low and then she will go in the OR most likely Wednesday or Thursday as of right now. Buddy will have a PH probe tube placed in her nose for a few days to see how much pressure and acid is in her intestines and stomach as well she will have a scope to remove the bezoars...We dont have a exact plan as of right now and we have to discuss about placing a port to infectious disease and see if they think its a decent idea because of her being prone to blood infections. We will have a better plan once we are there tomorrow. Thats all I know right now and if things change I will update again. Her doctor tried to direct admit us today but since he wasnt in the CHOP facility and he was at New Jersey he couldnt. Her GI doctor did everything he could for us today and he felt horrible because of all this happening but it wasnt his fault and it happens. Well we are all packed and ready for tomorrow its been a long and crazy day for us we are mentally and physically exhausted..Ill update in the AM! Thanks for being apart of this journey its amazing! This journey is only getting us stronger💪. We really appreciate everything! Buddy has been through things its unimaginable. But you would never know! She is amazing. We will never lose hope no matter what it takes we will continue to fight for this fighter! Jocelyn your amazing ! We will keep on swimming and climbing this mountain please keep those prayers coming its just been a rough day for all of us! Goodnight to the most strong and amazing prayer warriors! We are praying for a decent and uneventful night because we have a bust day and week ahead of us! 💜 thanks for being here and fighting with us through the good and bad! To be honest I cannot even imagine life without Jocelyn she has taught me and Im sure all of you a whole lot. No matter what the night or day brings that smile is there like nothing ever happened. She is my amazing, fierce little hero! I am so happy to be her momma and we will keep on fighting! Tomorrow is another day and Im praying for it to be less hectic! #littlefighter! #HopeForJocelyn #JustKeepSwimming #MyHero #FightLikeAGirl
Posted on: Tue, 13 Jan 2015 00:43:28 +0000
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