Its sad theres like little kids getting this now. There needs to be awareness about this. Most emergency rooms just think your crazy or faking. Its real and for me I can see and hear everything. It kind of helps to see that there are others out there but makes me sad that the specialists are not covered by medicaid. distonia should be treated like any other disease. just because the drs dont know enough about it is no excuse for the drs to keep allowing me to suffer in pain. If sam gets this you bet id be breaking down doors not locking her up in a mental ward just to get meds that make u gain a shit ton of weight. If I dont say something nobody will and they treat me like a drug addict or a mentally retarded person during a eppisode. I can do nothing more than pray for a cure or chance to go to ucla.
Posted on: Thu, 08 Jan 2015 01:08:49 +0000
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