Ive been going through closets & drawers trying to get rid of some things & make more room for Calebs equipment & toys. Ive decided to stop worrying about any type of decor & just use the small space that we have to best meet Calebs needs. Not that we have much decoration anyway, but most of what we do have is on its way out, or into storage along with some furniture that takes up too much space. When you have a kiddo with special needs, specifically one who can not sit or stand on their own, you end up with a lot of adaptive equipment that begins to take over your home. Lol! Bath chair, stander, wheelchair, homemade sensory table, homemade mobile, adaptive bed, suction, monitors, oxygen compressor, oxygen tanks, bags & boxes of formula, diapers, wipes, tubes, wires & battery packs. I even keep an Ambu bag on top of our living room curtain rod for emergencies & we have hung a beach ball from our living room ceiling for him to swat at like a tether ball. Today, Im making room for a lift. Weve actually had the lift for a while, shoved into a storage room, because in my mind Caleb is just a baby. Well, Ive hung on to the idea of him as a baby with white knuckles. Its time to let go... Its so hard to do! In the past weeks, Ive come to the realization that my baby really IS a young man now. I need to start trying to save my back so that I can be able bodied for him as long as possible. We started to incorporate the lift into our routine last week. I really dont know why it bothered me so bad to start using it. Maybe its the realization that a new chapter is beginning. A chapter where my sweet boy starts dealing with things like puberty and hormone changes. Ive been told those years can be quite difficult for kids like Caleb. Im praying God will be merciful & let seizures be manageable. Hormone changes can trigger more seizure activity according doctors & parents whove already gone through this stage with their Calebs. Its also hard for me to admit that I need to stop picking him up on my own. Maybe thats some sort of pride issue. Plus, learning to use it correctly & efficiently seemed overwhelming at first. Not to mention this lift just looks so serious. I know that sounds silly, but for real. This thing looks gargantuan, especially in our little home. It looks so stark & cold & unapproachable. I know, Im a weird-o. Never denied that. ;) I decided to try to make it look less hospitaly by adding some stickers. At least now it looks like its for a kid. We are going to pick out some more stickers this week. Gotta do whatever it takes to make life as easy as possible & make hard changes tolerable. By the way, Caleb thinks the lift is awesome. I need to take cues from his roll with the punches attitude. ;) cm
Posted on: Sun, 17 Aug 2014 20:21:58 +0000
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