JJs Journey: The hospital would not discharge me until 4 days after having jj. I was so upset & ready to go see my baby. My dad and jjs dad didnt want me to travel to Atlanta because it was risk of me getting sick but nothing or no one was going to stop me. We arrived to Childrens Hospital of Atlanta on a Tuesday my baby was 4 days old.he was in CICU (Cardiac Intensive Care Unit) When I saw him I just wanted to cry. He had so many lines and tubes & on so many medications. I was so confused I didnt know what to do or what to ask. It was always something negative about JJ. I wanted to hear something positive. After being there for 2 weeks jj still hadnt had his heart surgery and I was beginning to wonder why. finally the heart doctor came to me explaining that jj was not a candidate for open heart surgery. He had to many defects (bone abnormalities,one kidney, and his heart). So basically they were saying he would die. They were telling me to prepare myself to bring him home on hospice and let him pass away comfortably. At first honestly I accepted that my son was going to die and there was nothing I could do about it. The CICU moved JJ to the NICU because it was nothing they could do for him. The NICU staff were nice. I got to hold JJ when every I wanted. But they were to concern of JJs dads whereabouts in other words they were too nosy and focused on the wrong thing. At this point Jj wasnt coming home on hospice bc he could not come off the breathing ventilator. So they were saying he would die in the hospital. I got to the point that I told that hospital to send jj to Macon hospital to die here so he would be closer to family and everyone could come visit. they immediately put in the transfer request & told me he will be moved at 8am the next day. I felt like they were ready to get rid of us. I went back to the Ronald McDonald House to start packing when a woman stopped me & asked me my story. When I got to the transferring part she told me I shouldnt go anywhere bc CHOA was on the top #4 heart hospital list. She had a 4 month old heart baby also. She told me her story and all I could think was God gave her that miracle baby and he was going to give me mines too. By the end of our conversation I decided jj was staying in Atlanta. I cried and prayed about it then finally called the hospital telling them to cancel his transfer. They tried to talk me out of it. Asking me why and basically telling me there was no hope for jj. I told them you tell GOD that!
Posted on: Sat, 09 Aug 2014 04:27:30 +0000
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