Jacqueline writes: I think it has to be said that fibromyalgia is on a spectrum from mild to severe. The first five years I had it I thought it must be at the extreme end. I couldnt drive because holding the steering wheel caused pain in my arms that lasted for days. If I walked for half an hour I was bed ridden for the next three days Then it gradually went away to the point of getting pain that I could forge my way though and tough it out. I was proud of myself. Then another ten years later its now so incredibly extreme that I wonder how on earth I get through. I cant cook or clean or pay bills. I live for the half hour here or there that lets me do stuff. On the random day I feel good everything is focused on catching up on chores, no time for fun things. Im in so much extreme pain most days that I have to hold in the tears and am forced to lay down as sitting is too painful. Still there are others worse than me in wheelchairs who cant walk at all. I get so angry and frustrated or hopeless and sad. So please everyone on this site stop assuming we can all push through it just because you can. Stop thinking just because you got better purely with exercise and good food or some supplement that that will work for everyone. Stop thinking that just because keeping active keeps the worst of your Fibro at bay that those who need benefits are lazy and have given in or given up. Fibromyalgia is different for everyone. Today Im so angry at myself because I cant do what I have to do for my family and myself. The pain is so bad that I want to cry, but I cant let my family see that because they feel awful for not being able help me. Nobody wants to be this way and we all do everything we can to change our situation. Please leave your judgements behind when you make a comment on this site and keep it in the spirit of compassion and support. I write hear when I am at my whits end and have to let it out to someone, when Im at my most fragile and Im sure its the same for a lot of us.
Posted on: Mon, 13 Oct 2014 08:10:36 +0000