Jeannette Ketterle Burmeister Today is severe ME Awareness Day!!! - TopicsExpress

Jeannette Ketterle Burmeister Today is severe ME Awareness Day!!! Severely ill ME patients are house or bed bound. They need help with the most basic activities of daily living, such as eating and bathing. How much, on a day like today, do you think they want to hear about vacations? ... They are invisible almost all of the time. Is it so hard to give them some respect at least one day out of the year?! I am appalled by the CAA being that tone deaf. This is shocking even for CAA standards. 30 · 10 hours ago · Edited Libby Boone I agree with Jeannette. Severe ME Awareness Day is today. Severe patients are unable to go on vacation, owing to poverty and the illness that created the poverty. I guess the CAA not know about the overwhelming online support that patients are giving to this day? Not aware? What gives? 22 · 9 hours ago

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