June: Just a quick update since I am still gathering all of our - TopicsExpress



          

June: Just a quick update since I am still gathering all of our things for our hospital trip tomorrow. We had a lot of cleaning up and putting away from our trip to do over the weekend along with all of the make up school work; but never fear there is still fun to be squeezed in! The kids got to see Big Hero 6 this weekend which was another great Disney movie, I loved that my 7 year old told me when it was over that she cried at the end, Disney has a way of doing that to you even in an animated film. The boys loved the super hero action in the film and I think my 9 year old loved that the characters were older and no princesses were involved. After filling up on popcorn, yes they ate an entire GIANT bucket during the film, what else is there to do but go have dinner at the Waffle House, because we all love waffles in our house. Saturday ended with a little midnight puke from the 7 year old, so no church for us on Sunday, but by late afternoon all the grandparents had come for a visit and the kids enjoyed some great outdoor time with them. The kids did squeeze in a leaf pile making/jumping before the grandparents arrived too. Medically speaking this week? We spent all day Friday at the hospital going over the procedure this week and signing all those lovely consent forms. Grant needs some major prayers for this treatment to attack his cancer; we need some response to this treatment and I will leave it at that. Our little guy will be radioactive for a least a few days, then once he reaches a certain level we get to go home, but need to keep him around the house for another week or so. The radiation will be given six weeks to attack the cancer and then we will scan again. Grant will be pretty sedated this week as he is so radioactive from the infusion that our actual time in his room will be very limited; we will do a lot of looking at each other through a window and when we do see him it will be under lots of gloves and gowns and we need prayers that he will be able to tolerate this separation (and us too!). This treatment will drop his counts just like chemo does, but other than that it will be a wait and see on what side effects he responds with. We had such a great trip to Disney, it was difficult to be back on Friday to the reality of what we are facing with this disease. We are always asking you to pray for endurance for us. If you are running a marathon, the Disney trip was a downhill sprint that arrived just as we thought we were about to give in, the legs were becoming heavy and we were mentally becoming discouraged - but downhill arrived and the joy of wind in your face and the ease on your body as you follow that downward slope; and now we turned a corner and started back uphill again. We cant see however how steep the slope actually gets or how long we have to keep going uphill either. We are still going though, we havent hit our wall yet. We are surviving off the living water the grace of God provides us; the crowd of all of you cheering us on. Keep cheering us on; keep the prayers coming. If you were to hold up a glittering poster board of encouragement this week it would be for us to be able to keep Grant occupied and at ease during this treatment; for the treatment to be able to attack the cancer; for endurance for us and all of our children on this marathon of cancer. One step at a time, one prayer at a time. #graceforgrant A smile you needed - how about a few afternoon leaf pile fun.
Posted on: Mon, 10 Nov 2014 05:08:51 +0000

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