Just been to Alder Hey to present in front of their grand round. Basically it is in a lecture theatre and loads of Alder Hey staff and consultants came. I had been invited to speak about a parents view of Moebius Syndrome and how rare syndromes are dealt with by the medical profession. I was very nervous before but it was fab and they asked questions. One consultant even asked for advice on how to tackle giving diagnosis to parents! They were all very kind. Phew now back to work!
Posted on: Fri, 11 Jul 2014 10:20:11 +0000
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