Karen asks... My son has a myopathy that is unknown. He was 2 - TopicsExpress

Karen asks... My son has a myopathy that is unknown. He was 2 months old and barely held his head up. He is now 18 months old and no answers yet. He is just starting to roll over, but that is all hes doing, so i know hes developmentally delayed. He also has hypertonia and has a feeding tube due to severe reflux at 6 months old. Can u repost and see if anyone has seen anything like this? He has already had a muscle biopsy that shows nothing. The doctors r completely baffled at Hershey. Thank you for your time.

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