Kayden is in her 2nd home today, ICU at Childrens. Sorry I didnt update last night, I was exhausted by the time we got into our room and settled. Wednesday, Kayden was running a temp, crabby, sleepy and started needing oxygen. Wednesday night she began having a junky sounding cough and requiring lots of suctioning. I figured at some point over the last week or so she may have aspirated while she was vomiting and probably has pneumonia again. I was going to call and get a chest x-ray and antibiotics if needed Thursday morning (yesterday) if needed. She wasnt in any distress, breathing was nice and even, only requiring 2-3L of oxygen. The reason I took her to the ER was because she was having a seizure that I couldnt get to stop. Ativan usually works pretty quick to stop her seizures, yesterday it did nothing. Plus it was a type of seizure she has never had before, well at least, her movements were like never before. But after we got to the hospital, her oxygen requirements became more and more and she ended up on a non re-breather and Childrens was being called. She hasnt had another seizure since yesterday before we left Mtn Veiw. Im pretty sure it happened just because she was sick and her seizure thresh hold was lower so she had a break through seizure, especially now since she hasnt had another. We had to go through the ER yesterday at Childrens, thats why it took so long to get settled last night. While down there Kaydens blood pressure was really low so they put her on an epi drip for a while. That resolved last night so the epi has been stopped. She was placed on BIpap and seems to be responding very well so far to that. They have had to go up on the oxygen levels a bit, but she is doing good. As for her usual issues her temp is low, sodium high, potassium is low. Heart rate is normal right now but give her time, shell show out there too! They have started her feeds back today at noon, hopefully by 4 or 5 this afternoon shell be up to full feeds and we can stop all the extra fluid and her sodium will level out. Plans for today, Ive requested a consult with GI so maybe we can figure out where all the nausea and vomiting are coming from. Ive also told them my thoughts on converting back to a Gtube instead of the GJ. Her x-ray this morning looked a bit better than last nights. She is on clindamycin for the pneumonia, all her breathing treatments are every 4 hours and thats about it for now. My opinion is thats plenty!!! Now to convince Kayden thats good! She needs to get better, we have an 18th B-Day party to give Monday...Aunt Bailey!!! The Drs have not rounded on her so I dont know any of their plans yet, Im pretty sure it wont be too much as long as she doesnt start showing out. Praying the Docs that know her will be here this weekend, Im too tired to argue!!! Also praying for a speedy recovery!
Posted on: Fri, 08 Aug 2014 18:02:15 +0000
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