Kaylas a happy girl. She spent last night with me, and watched Christmas movies on Hallmark, and helped wrap a few gifts. It was so great seeing her smile. She goes back to Childrens Mercy to have her port removed Tuesday. A big relief that will be. She can then have Tylenol if she gets a fever, no more ER visits, or ambulance rides. Praise the Lord!! She did however break out with a rash last night, and this morning. Not sure whats going on with that, but we are watching her. Most rashes you can kinda feel a raise in the skin, but this rash you cant. We have planned a party for her on November 22. Shes looking forward to that and she has a dress picked out. She calls it her party dress. I told her whatever she wears shes gonna be beautiful. She asked if her hair was gonna grow back again.i told her why yes it is....its gonna grow back like crazy and all over that beautiful head. Lol she just smiles and says ..Oh Grandma. My heart is so filled with joy over her news. Its also filled with so much love and appreciation for each of you. Youve been staying on your knees and lifting her up for 8 months. I know shes still got to learn to walk, but the biggest battle is done, and we all won. Kayla beat it, you were all a part of that. We will never be able to repay you, but p,ease know we live and appreciate you. You are family. Kayla took a few pics and she wanted to share. Hope you enjoy. Thanks again, goodnight and God bless!
Posted on: Sun, 16 Nov 2014 03:19:10 +0000
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