Keep up with the latest news on the RARE community with our RARE blog at globalgenes.org/blog. We publish dozens of articles each month including medical discoveries, personal stories, foundation events and much more! Recent articles include: * Raising a Medically Fragile Child: Zoe with Congenital Central Hypoventilation Syndrome bit.ly/1eR7b5i * Chelsea’s Northera Gets Another Chance at Treating Autonomic Dysfunction bit.ly/1dYokpU * Sam Berns, Progeria Patient and Activist, Dies at Age 17 bit.ly/1b8nKoI * RDLA and Global Genes Urge Patients to Share Their Story with Congress bit.ly/1gVUlCn
Posted on: Sun, 19 Jan 2014 13:00:06 +0000
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