Kiira can use some prayers--I just posted about how well she is - TopicsExpress

Kiira can use some prayers--I just posted about how well she is doing, but the past few days she has had multiple new blisters, some in places we havent seen before. I hate poking my baby with a needle, yelling at my other kids to stop touching her, and feeling like despite the care we use in handling her, she is still getting injured. I hate EB. To top it off, the news that we got approved for MediCal turns out that were not, so back to square one, with hours spent filling out paperwork, on hold on the phone, and in-person visits to get all of this sorted out. Id rather be spending that time with my kids... #CureEB

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