Last night, I received my Ehlers-Danlos diagnostic rep or with recommendations. It was very emotional and intense. After all these years of total neglect, it confirms and affirms everything Ive been saying, and indicates how great my need has been for the right treatments/therapies, and how not acknowledging my condition for what it is has been directly to blame for the degeneration and disappointing affects that couldve been prevented. Dr. suggests I have an overlap with type 7, or something more rare (i think it is 7, or 8?) especially based on the dental traits effects. oh and he says I definitely need a Chiari and the cervical/cranial instability cannot be neglected anymore.
Posted on: Mon, 17 Nov 2014 19:47:35 +0000