Last night we did an x-ray and discovered that on top of the extra fluid that my body is retaining; My intestines are also backed up. My kidneys arent functioning correctly, my potassium levels are high and my heart is working too hard causing me to need oxygen We are doing Miralax every two hours in hopes that the blockage will clear out of my intestines. The amount of water I am having to drink is making me violently nauseated along with a migraine that wont go away I asked if we could just do a ng tube so that I didnt have to drink so much and they said they dont want to go down that road right now unless we just have to. Im hardly allowed to eat or drink anything that has potassium in it since my levels are so high and they just keep rising. Im forced to drink all my miralax and meds with just water and its disgusting Were monitoring my heart 24/7 and doing EKGs everyday which is exhausting along with everything else that is going on. I cant study on my school work, I cant think and I cant even write without my hands shaking uncontrollably. My body hurts, my back hurts, my kidneys hurt and Im having migraines everyday that just wont go away. Im sick of living like this. Nearly my whole 16th year has been spent sick or in and out of the hospital. It shouldnt be this way. No one should have to live like this. Ever.
Posted on: Mon, 07 Apr 2014 21:30:38 +0000
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