Last year, when I did the Home2Rome ride for Ciara and Reverse - TopicsExpress



          

Last year, when I did the Home2Rome ride for Ciara and Reverse Rett, we were met at the finish line by Alessia Ceccarelli and Orietta Mariotti, who represented the Italian Rett charity, Pro RETT Ricerca. Both women are also parents of girls who have Rett Syndrome. Today, we had the very sad news that Alessias daughter, Giorgia, died suddenly this morning. She was only 6 years old! Thankfully, when I got home from work tonight I was able to make sure Ciara had even more cuddles and kisses than normal, but painfully aware of how fragile the lives of girls with Rett Syndrome is. Our thoughts and prayers are very much with Giorgia and her family at this heartbreaking time! Rest in peace beautiful angel xxx With Gayle Fowler, Sion Owen, Colin McLoughlin, Lawrence Holland, John Owen, Stephanie Fowler-Thompson, Patricia Millett, Tracey Phythian, Michael Banner, Peter Downey, Steve Monk Downey
Posted on: Fri, 08 Aug 2014 20:25:16 +0000

Trending Topics



Recently Viewed Topics




© 2015