Lepo število se nas je zbralo na strani o ozaveščanju o Marfanovem sindromu. Potrebno se je zavedati, da večja ko bo ozaveščenost manjša bo možnost, da bi pri posamezniku spregledali simptome ter mu s tem zagotovili pravočasno zdravljenje. Pomemben je vsak posameznik, ki obišče to stran. Prav vi ste tisti, ki nam lahko pomagate pri ozaveščanju. Peščica nas je,ki bolehamo, kar pomeni da nas je premalo, da bi lahko brez vas uspeli razširiti besedo o Marfanovem sindromu. Številka katera nam kaže koliko ljudi se nam je pridružilo na strani ni samo številka, katera šteje posameznike na strani ampak je številka, ki nam pomaga reševati življenja. Zato se vam zahvaljujem, da spremljate stran in pridobivate znanje, ki se trudim ga v prvi vrsti deliti z vami iz lastnih izkušenj prav tako iz evropskih skupin ter seveda iz Amerike, ki je vodilna pri ozaveščanju na tem področju. Veliko časa namenim ozaveščanju toda vse z enim samim namenom - PREPREČITI SMRT IN REŠEVATI ŽIVLJENJA. Hvala lepa vsakemu posamezniku, ki s srcem in zanimanjem spremljate informacije o Marfanovem sindromu. A good number of us gathered at the side of the awareness of Marfan syndrome. It should be remembered that higher awareness will be less able to overlook the individual symptoms, and hence to ensure timely treatment. It is important to every individual who visits this site. Also you are the one who can help us in raising awareness. A handful of us, which means that too few of us to be able to succeed without you spread the word about Marfan syndrome. Number which shows how many people joined us on the side of not only the number of which shall be considered by the individuals but is a number that helps us save lives. Therefore, I thank you that we follow the page and retrieve knowledge bother in the first place to share with you from my own experience, from European groups and, of course from America - is a leader in raising awareness in this area. A lot of time to devote to raising but all with one purpose - to avoid death and save lives. Thank you very much for people who are the heart and interest in track information about syndrome. MARFAN SYNDROM SLOVENIA ♥ youtu.be/i5SqN1mG1ro
Posted on: Wed, 04 Sep 2013 14:27:21 +0000
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