Little Ruby inspires schools £15,000 fundraising campaign Little Ruby Baker loves school so much she’s inspired a £15,000 fundraising campaign to make sure she can stay. Ruby, seven, a pupil at St Edward’s in Lees, Oldham, has Leigh’s Syndrome, a very rare condition which affects just one in 36,000 children. The inherited disease is a progressive and terminal degenerative condition which affects the central nervous system, causing developmental regression and seizures. Many such children attend specialist schools – but defiant Ruby can now stay in mainstream education after winning a campaign for a sensory room. The room for Ruby and her classmates should be ready by September after thousands of votes won a competition run by Engage Mutual insurance to scoop £5,000. The rest of the cash was raised through fundraising – and a £4,000 anonymous donation. Ruby’s mum Natalie Baker, 39,a baby swimming teacher, used Facebook to push for votes – and the response was fantastic. Natalie, who lives with husband Mick, 41, in Watersheddings, said: “Ruby is a very very happy smiley little girl. “Ruby loves school – she was off because of a snow day last year and while her brother celebrated, she cried. “She’s very popular – she was on a camping trip [...] manchesterinnews/little-ruby-inspires-schools-15000-fundraising-campaign/
Posted on: Fri, 01 Aug 2014 15:15:46 +0000
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