Maddie is doing it a bit hard this week, fighting off a nasty cough and itchy rash and now a urine infection she is struggling to get through each day - and night with the cough - but during the day she gets a 2nd wind mid afternoon and makes the most of it then crashes and thats her done for the day and its back on the couch. Tomorrow is a hospital day of testing, she is having her antibodies tested and her B cells tested - this is the first big blood test of her antibodies since coming home from Starship but it will be at least a week before we know results, Maddie is also having her DMSA in the morning this is when we access her port fill her full of radioactive glow in the dark meds and scan her kidney to see how much scarring we do actually have Im hoping with all these tests it may give us a good indication of what the future holds...... Today as Maddie complained about the amount of pills she needs to swallow each day I thought I would let you see what her morning dose is like.....
Posted on: Sat, 04 Oct 2014 20:36:53 +0000