Mama needs sleep , this is tough on y heart strings ..., but I know she will feel much better when she gets some nutrition and fluids .... Im so ready to get her on the road to better health.... How did we even get to this point? And why didnt they listen to me when we told them something was off about her eating after that last bad spell?? It shouldnt take a child to go without eating long enough to where they have lost almost 14 pnds , we made her drink as much of the mess as possible was not even a cup full before she showed me her belly it bloated so big ... She had to wait a few hrs before she would drink any more ...shes only went potty 1 time ,yes it was a hood output but not sure that was enough I guess we shall find out. They told me on the phone that if she wasnt all the way cleaned out they would take care of it..... Idk how they dont do enamas ..well I know yall are praying for her along with us and her family and friends .... Thank you all I just hate that has come to this , I want my baby to be all better as any mother would .... Shes so big hearted and full of love ... Always taking about others b4 herself .... Cant believe she will be 11 in just a week and half , when we started on this journey she was only 7yrs old it wasnt near as bad then as it is now ,the only difference is she isnt passing out as much ... Which dont get me wrong Im thankful for that ...but watching her not eat has been horrible and frightening Im not sure her body could have went much longer without an bad spell happening , her eyes tell her story just look in them a while go to the big inning of this journey and start looking you will see Moto and E.D.S are horrifying ..... Many have it a lot worse than Mickey I know and understand ,but Im her mom and this sucks.. Plz share our story to help shed light on MITO and EDS help give her a chance to survive in the near future by spreading awareness and helping support research ....Mohave a blessed night this mama has some praying to do ,~Julie mickeys mama
Posted on: Fri, 26 Sep 2014 04:46:02 +0000
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